A biotech company that conducts research and develops treatments for people living with rare diseases such as Pompe disease wants your help. They are recruiting Pompe patients and caregivers to take a short online survey about your knowledge and understanding of clinical trials and research. 

The results of this survey will help guide the development of patient support and awareness programs for current and future clinical trials. In appreciation of your time, the summary of the results of this survey will be shared with surveyors and patient advocacy organizations via email. CLICK THE PHOTO ABOVE