The United Pompe Foundation was formed to assist patients and/or their families with medical costs and other expenses that these patients and families face and may not be able to cover, or fully cover, through their insurance.
Another very important issue we all face is raising the public awareness of Pompe disease. As we are all aware there is very little public awareness of this devastating disease. We hope to be a valuable resource that patients can turn to if they need help. If you have any questions, comments, or would like to help please contact us.
If you would like to make a donation to the Alicia Blackington Wagle Scholarship Fund
If you would like to make a donation to Amber Cowan (1982-2009)
If you would like to make a donation to Jayden Terrence Johnson
Jayden would have been 11 years old on April 10, 2014. He is one of the oldest and longest treated Infantile Pompe patients in the world. Learn more here.
If you would like to make a contribution to United Pompe Foundation
Make your check payable to:
United Pompe Foundation
5100 N. Sixth St. #119
Fresno, CA 93710
Your contribution is tax deductible.