United Pompe Foundation

The United Pompe Foundation was formed to assist patients and/or their families with medical costs and other expenses that these patents and families face and may not be able to cover, or fully cover, through their insurance.

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POMPE Survey

A biotech company that conducts research and develops treatments for people living with rare diseases such as Pompe disease wants your help. They are recruiting Pompe patients and caregivers to take a short online survey about your knowledge and understanding of...

CLINICAL TRIALS/STUDIES

A FEW OF THE CLINICAL TRIALS/STUDIES THAT ARE CURRENTLY RECRUITING.  FOR A COMPLETE LIST VISIT WWW.CLINICALTRIALS.GOV