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Pompe Links

  • MedicAlert Brochure
  • Home Adaptions: Sharon Krueger
  • Flying with a ventilator in the USA
  • Juan Magdaraog Blog
  • Myozyme®
  • Association for Glycogen Storage Disease (UK)
  • International Pompe Association (IPA)
  • Genzyme’s Pompe Website

Recent Posts

  • A Primer for Family Medicine and Primary Care: Focusing on Pompe Disease
  • POMPE Survey
  • Amicus Therapeutics Announces Regulatory and Clinical Updates for AT-GAA in Pompe Disease
  • CLINICAL TRIALS/STUDIES
  • Higher Lumizyme Dose May Help Prevent Pompe Progression in Infants, Case Report Suggests

Archives

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  • March 2017
  • December 2016
  • November 2016
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  • January 2016
  • October 2014

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13005 Greenville Avenue,
California, TX 70240

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+22 140 006 754

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[email protected]

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About

The United Pompe Foundation was formed to assist patients and/or their families with medical costs and other expenses that these patients and families face and may not be able to cover, or fully cover, through their insurance.

Contact

United Pompe Foundation
5100 N. Sixth Street #119
Fresno, CA 93710

Email: [email protected]
Phone: (559) 227-1898
Fax: (559) 227-1898

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