by United Pompe | Jan 18, 2016 | News
Our son BartJan was 6 weeks old (born 14-10-1998) when we heard the diagnoses ”Pompe´s disease”. The doctor didn’t trust some signs BartJan was showing and did some tests to find out what was wrong. Our world collapsed when the seriousness of this disease...
by United Pompe | Jan 18, 2016 | News
Grandparent’s Survey
by United Pompe | Jan 18, 2016 | News
United States Pompe Community Update
by United Pompe | Jan 18, 2016 | News
Expression of Hope 2014
by United Pompe | Jan 18, 2016 | News
Share your thoughts by participating in an interview… EVIDERA is seeking participants for interviews about their experience with late-onset Pompe disease • Interviews will be conducted August 21st to August 24th in Santa Monica, California • Interviews will involve...
