The United Pompe Foundation
was formed to assist patients and/or their families
with medical costs and other expenses that these patients
and families face and may not be able to cover, or fully
cover, through their insurance.
Another very important issue we all face is raising
the public awareness of Pompe disease. As we are all
aware there is very little public awareness of this
devastating disease. The committee is comprised of Pompe
patients and parents of Pompe patients so that we have
a good understanding of the many problems those families
must deal with on a daily basis. We hope to be a valuable
resource that patients can turn to if they need help.
If you have any questions, comments, or would like to
help please contact us.
If you would like to donate in memory of Alicia
Please click Here